Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 41 doctor with experience in RASopathies near Kansas City, MO. Of these, 36 are Experienced, 4 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    41 providers found
      Experienced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics

      The Childrens Mercy Hospital

      2401 Gillham Rd, 
      Kansas City, MO 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Aliessa Barnes is a Pediatric Cardiologist and a Cardiologist in Kansas City, Missouri. Dr. Barnes is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heterotaxy Syndrome, Myocarditis, and Heart Transplant. Dr. Barnes is currently accepting new patients.

      Advanced in RASopathies
      Neurosurgery
      Advanced in RASopathies
      Neurosurgery

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Paul Camarata is a Neurosurgery provider in Kansas City, Kansas. Dr. Camarata is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Meningioma, Radiation Induced Meningioma, Neurofibromatosis Type 2 (NF2), Awake Craniotomy, and Thrombectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in RASopathies
      Advanced in RASopathies

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English, French, German
      Accepting New Patients
      Offers Telehealth

      Hinrich Staecker is an Otolaryngologist in Kansas City, Kansas. Dr. Staecker is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Meniere Disease, Acoustic Neuroma, Infant Hearing Loss, DFNB1, and Myringotomy. Dr. Staecker is currently accepting new patients.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Advanced in RASopathies
      Otolaryngology
      Advanced in RASopathies
      Otolaryngology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      James Lin is an Otolaryngologist in Kansas City, Kansas. Dr. Lin is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Infant Hearing Loss, DFNB1, Jones Syndrome, Meniere Disease, and Myringotomy. Dr. Lin is currently accepting new patients.

      Advanced in RASopathies
      Oncology | Hematology
      Advanced in RASopathies
      Oncology | Hematology

      University Of Kansas Hospital Authority

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Saqib Abbasi is an Oncologist and a Hematologist in Kansas City, Kansas. Dr. Abbasi is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Atypical Teratoid Rhabdoid Tumor (ATRT), Pediatric Low-Grade Glioma (pLGG), Embryonal Tumor with Multilayered Rosettes, Ependymoma, and Bone Marrow Transplant. Dr. Abbasi is currently accepting new patients.

      Experienced in RASopathies
      Pediatric Gastroenterology | Gastroenterology | Pediatrics
      Experienced in RASopathies
      Pediatric Gastroenterology | Gastroenterology | Pediatrics
      2401 Gillham Rd, Provider Enrollment, 
      Kansas City, MO 
       (1.1 miles away)
      Languages Spoken:
      English

      Alka Goyal is a Pediatric Gastroenterologist and a Gastroenterologist in Kansas City, Missouri. Dr. Goyal is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Crohn's Disease, Viral Gastroenteritis, Ulcerative Colitis, Endoscopy, and Colonoscopy.

      Experienced in RASopathies
      Pediatric Cardiology
      Experienced in RASopathies
      Pediatric Cardiology
      2401 Gillham Rd, 
      Kansas City, MO 
       (1.1 miles away)
      Languages Spoken:
      English

      Pezad Doctor is a Pediatric Cardiologist in Kansas City, Missouri. Dr. Doctor is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Double Outlet Right Ventricle, Double Outlet Left Ventricle, Transposition of the Great Arteries, Ventricular Fibrillation, and Splenectomy.

      Experienced in RASopathies
      Pediatric Cardiology
      Experienced in RASopathies
      Pediatric Cardiology
      2401 Gillham Rd, 
      Kansas City, MO 
       (1.1 miles away)
      Languages Spoken:
      English

      John Papagiannis is a Pediatric Cardiologist in Kansas City, Missouri. Dr. Papagiannis is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Ventricular Fibrillation, Atrioventricular Nodal Reentrant Tachycardia (AVNRT), Arrhythmias, Heart Block, and Cardiac Ablation.

      Experienced in RASopathies
      Pediatric Otolaryngology | Otolaryngology
      Experienced in RASopathies
      Pediatric Otolaryngology | Otolaryngology
      2401 Gillham Rd, 
      Kansas City, MO 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kim Baker is a Pediatric Otolaryngologist and an Otolaryngologist in Kansas City, Missouri. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Otitis, Familial Deafness, Enlarged Adenoids, Laryngomalacia, and Adenoidectomy. Dr. Baker is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English, French
      Accepting New Patients

      Brian Everist is a Radiologist in Kansas City, Kansas. Dr. Everist is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Caffey Disease, Calcium Pyrophosphate Arthritis, Neurofibromatosis Type 2 (NF2), and Synovial Osteochondromatosis. Dr. Everist is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients
      Offers Telehealth

      Roukoz Chamoun is a Neurosurgery provider in Kansas City, Kansas. Dr. Chamoun is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Meningioma, Pituitary Tumor, Hypothalamic Tumor, Awake Craniotomy, and Gastrostomy. Dr. Chamoun is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies

      Kansas University Physicians Inc

      3901 Rainbow Blvd, Suite 5300, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Thomas Whittaker is an Ophthalmologist in Kansas City, Kansas. Dr. Whittaker is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Graves Disease, Strabismus, Hereditary Ataxia, Optic Neuritis, and Nerve Decompression. Dr. Whittaker is currently accepting new patients.

      Experienced in RASopathies
      Radiation Oncology
      Experienced in RASopathies
      Radiation Oncology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English, German, Mandarin, Zhuang
      Accepting New Patients
      Offers Telehealth

      Fen Wang is a Radiation Oncologist in Kansas City, Kansas. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Meningioma, Lung Cancer, Pleuropulmonary Blastoma, and Posterior Fossa Tumor. Dr. Wang is currently accepting new patients.

      Experienced in RASopathies
      Radiology | Neuroradiology
      Experienced in RASopathies
      Radiology | Neuroradiology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English

      Nicholas Harn is a Radiologist and a Neuroradiologist in Kansas City, Kansas. Dr. Harn is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Cerebral Arteriovenous Malformation, PEHO Syndrome, X-Linked Intellectual Disability, Siderius Type, and Aicardi-Goutieres Syndrome.

      Experienced in RASopathies
      Experienced in RASopathies

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English

      Kyle Summers is a Radiologist in Kansas City, Kansas. Dr. Summers is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Mohr-Tranebjaerg Syndrome, X-Linked Intellectual Disability, Siderius Type, PEHO Syndrome, and Aicardi-Goutieres Syndrome.

      Experienced in RASopathies
      Plastic Surgery | Otolaryngology
      Experienced in RASopathies
      Plastic Surgery | Otolaryngology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Yelizaveta Shnayder is a Plastic Surgeon and an Otolaryngologist in Kansas City, Kansas. Dr. Shnayder is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Oral Squamous Cell Carcinoma, Acinic Cell Carcinoma of Salivary Glands, Salivary Gland Tumors, Gastrostomy, and Laryngectomy. Dr. Shnayder is currently accepting new patients.

      Experienced in RASopathies
      Neurology | Addiction Medicine
      Experienced in RASopathies
      Neurology | Addiction Medicine

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Jorge Kawano-Castillo is a Neurologist and an Addiction Medicine provider in Kansas City, Kansas. Dr. Kawano-Castillo is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Stroke, Memory Loss, Migraine, and Transient Ischemic Attack (TIA). Dr. Kawano-Castillo is currently accepting new patients.

      Experienced in RASopathies
      Radiology | Interventional Radiology
      Experienced in RASopathies
      Radiology | Interventional Radiology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Zachary Collins is a Radiologist and an Interventional Radiologist in Kansas City, Kansas. Dr. Collins is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Ascites, Retroperitoneal Fibrosis, Intussusception in Children, Liver Embolization, and Bone Marrow Aspiration. Dr. Collins is currently accepting new patients.

      Experienced in RASopathies
      Radiology
      Experienced in RASopathies
      Radiology

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English

      John Leever is a Radiologist in Kansas City, Kansas. Dr. Leever is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), CAPOS Syndrome, Meningioma, and Cerebral Arteriovenous Malformation.

      Experienced in RASopathies
      Pediatric Cardiology | Cardiology
      Experienced in RASopathies
      Pediatric Cardiology | Cardiology

      Saint Lukes Physician Group Inc

      4330 Wornall Rd, Suite 2000, 
      Kansas City, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Brian Birnbaum is a Pediatric Cardiologist and a Cardiologist in Kansas City, Missouri. Dr. Birnbaum is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Cardiomyopathy, Congenital Heart Disease (CHD), Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Heart Transplant. Dr. Birnbaum is currently accepting new patients.

      Showing 1-20 of 41

      Last Updated: 10/30/2025

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor near Kansas City, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor near Kansas City, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors near Kansas City, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors near Kansas City, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor near Kansas City, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor near Kansas City, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors near Kansas City, MO?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More RASopathies Doctors by city